Privacy policy

Last updated September 2026

This policy explains what information the Barry Blue Foundation collects through barrybluefoundation.com and how we use it.

What we collect

We only collect what you choose to send us through the forms on this site: your name, email address, and optional phone number, the message you write, and, on the family referral form, your role and an optional hospital or treatment center name. We ask that you do not send medical records or diagnosis details.

How we use it

We use your information to reply to you, to consider requests for help, and, if you sign up for updates, to send you occasional emails about the Barry Blue Foundation. We do not sell, rent, or trade your information.

Email updates

You can unsubscribe at any time using the link in any email, or by sending us a message through the contact form.

Services we rely on

Form submissions are received and stored by our website host, Netlify. Links on this site take you to Amazon, Venmo, Instagram, and YouTube, and the animated short is embedded from YouTube. Each of those services has its own privacy policy.

Children

Our books are for children, but this website's forms are meant for adults. We do not knowingly collect information from children under 13.

Removing your information

To ask us to delete information you sent, contact us through the form on the home page.

Our status

The Barry Blue Foundation is a mission-driven publishing project and is not a 501(c)(3) public charity. Donations and book purchases are not tax-deductible.